For once.....

There are days that I want to put on a smile and not struggle, but it is not always that easy. People who don't have a chronic illness don't know how hard it is for those of us who do and have to keep putting one foot in front of the other. One thing I have found with DM that I can't explain to anyone what my daily life is like, especially when I hear "well you look great." I appreciate those words but some days I just want someone to understand that I am scared out of my mind of what can happen. I don't like to let on to my family how afraid I am of driving to work or being out and about alone because I don't know if my muscles might give out. I don't want to give up any of my independence so I hide how afraid I really am. Some days are way harder than others to put on my clothes and walk out the door holding my head high. Like my picture says I don't plan on giving up the fight any time soon but some days I struggle to muster the strength to smile. Today is a rough day but I know it will pass. The weekends are the hardest for me because the heavy medicine happens and usually on Sunday I crash hard. But I know that on Monday it's time to put my big girl pants on and move forward. Is anyone listening...is anyone out there????