Bringing everyone up to speed...

My daily life has changed so much in the last two months since my diagnosis. Many have no idea what Dermatomyositis is, heck I had no idea, it took me almost two weeks to just be able to pronounce the word. Dermatomyositis is a muscle and skin disease that there is no cure for but can be managed with medicine. Believe me when I say that my medicine regiment isn't something that I would wish on anyone. I have to be on two immune suppressive drugs (meaning that I have compromised immune system now), folic acid, prednisone, calcium, vitamin D and a shot every six months. Am I better than I was when I went to the doctor yes, but I know that it's all because of the medicine and not a cure. This is a very rare autoimmune disease that they still don't know how it comes about or a cure for it. Am I afraid...YES! When I read what else can come from this disease I am terrified but I won't let it stop me from living. My life has been changed but I won't give up the fight. I can't be out in the sun like I used to because it can cause a serious flare, I have to be careful around sick people (I work at a school) because I can get much sicker than anyone else and possibly end up hospitalized. I have had to accept the fact that my life will never be the same. I have found that suddenly my leg(s) or arm(s) will give out, it's like the orders from my brain to move just don't get where they are supposed to go. Again, I WILL NOT give up the fight. I will continue to research and learn more and more how to live with this disease/disorder. Can the average person have a voice and fight for something, YES, we don't have to be a celebrity to be able to be a voice for a disease/disorder and I plan on being that voice for Dermatomyositis. I am a Dermatomyositis Warrior and I am Unbreakable!